If you haven’t heard by now, the CDC recently revised their estimates of annual Lyme Disease cases in the US up from 30k a year to 300,000 a year. (That number does not include the positive tests from the leading Lyme laboratory, IGENEX, because the CDC does not acknowledge that laboratory’s work.) A project is under way to put faces to that number. You can see the 300K cases of Lyme photo project here. I am one of the lucky ones who’s case was confirmed relatively early and am now a good 90% recovered to my pre-Lyme self.
To my Lyme friends, you can add your picture by emailing it to firstname.lastname@example.org.
One of the most important things to know is if you get by a tick, save the tick in an old pill bottle or plastic baggie with a damp cotton ball. You can then send the tick in to be tested for Borellia Burgdorferi (Lyme bacteria) as well as the other infections ticks carry such as Babesia, Bartonella, etc. It is far easier to test the tick then it is to test your blood because the human tests miss up to 50% of the cases.
I highly recommend this article by my Lyme Doctor Bitten by a deer tick, what do I do? HELP! as well as this one which covers some very good Lyme Disease basics.
It is also important to know that if you receive inadequate treatment for Lyme when you are first treated or even worse, no treatment at all, that Lyme can persist and become a systemic infection which is what happened to me. It is scary to think that when you go to your primary care doctor expecting them to know what is necessary to treat you for this disease that most doctors have not been adequately trained to treat this illness. I still hear stories regularly from people about doctors turning them away and not treating them at all even when they have a documented tick bite. Just last night at a meeting a good friend shared the story of his sister-in-law with me and last week our neighbor from one block over. And we live in an endemic region so you would think doctors would be trained!
You can read my Lyme story here.
3 thoughts on “I am one of 300K cases of Lyme a year ignored by the CDC”
So sorry to hear about your very unhappy experience. Wonderful of you to spread the word about Lyme Disease, so as to warn and help others. Wishing you well with your ongoing recovery!
Keep on recovering and keep on spreading the good word!
I’m reminded of earlier this year when the horrid side effect of Statin drugs almost slayed me with pain… and to think many doctors willingly supply the drugs without ever doing their homework to determine the full effect of the supposed miracle cures!
We, the sufferers, seem to be the educators as well. Strange, but true!
Thanks for the positive wishes. One of the things I love about my Lyme Doc is that he doesn’t have a God complex. He is honest when he doesn’t know something and since Lyme treatment is still evolving he is willing to learn right alongside his patients if there is something I want to try.