Big Pile, BIG cost – little tick, BIG problem
This pile of bottles is a visual to document the consequences of what happens when typical Lyme disease treatment fails. This represents just over 9 months of treatment and we aren’t done yet.
Are you surprised to hear that the standard treatment provided for Lyme disease can fail? I was very surprised too when I found out the hard way. What may surprise you even more, is that this pile is relatively small compared to people who are far sicker than I am; generally people who are fighting more than one infection at once or whose cases went undiagnosed for years.
This week, I feel better than I have in an entire year. I am incredibly grateful, enjoying every minute and more hopeful then I have been in several months that my healing journey will end in a good place. Unlike me, a 17 year old young lady that I have met through a local Lyme group is still having a terrible time of things after 5 long, hard years of treatment. (My heart breaks for her lost youth.)
I believe we need two levels of prevention with Lyme. In addition to the do your best to avoid a bite strategy that you have probably already heard about, I think we need a second strategy – a concerted effort to educate practitioners and the public about what to do to avoid getting chronic Lyme once they have been bitten. Because black-legged tick nymphs are even harder to see than the adult ticks, it is impossible to totally prevent bites but maybe it is possible to prevent the incredible pain and suffering I have seen among people with serious cases of Lyme disease.
(Note: since posting this a couple days ago, I have learned that two Lymies lost their battle this week, Brian W. (Michigan) and Barbara Jean (New York), may you be in peace and pain-free at last.)
What nymphs & ticks look like – check out this poster.
What to do when you are bitten – some tips
What the serious consequences of untreated or under-treated Lyme can look like – View the movie Under Our Skin